9 Answers

Maybe this can help anyone reading this with symptoms and stress of Lupus...
I have had SLE for 20 years at first I had so many problems that was caused by my Lupus.  I had muscle weakness and temporary paralysis in my back with tremendous pain, muscle spasms that lasted for days at a time again with extreme pain, numbness, sensitivity to touch, extreme fatigue, dry mouth and eyes, sores around my mouth, losing my teeth, lost tips and my fingers from the Raynauds that the Lupus aggravated. I have permanent scarring, and purple and reddish freckle type scarring on my face, and now experiencing kidney liver and lung problems. I'm 45 yrs old was never able to have but 1 child after I was diagnosed, but I continued on without depression or extreme flaring by staying positive and focused on family.  I'm unable to work but try keeping myself busy with helping others as much as I can and I also foster children.  I have lost weeks and even months at a time my body shutting down with weakness but made it out by constantly praying when I would awaken and asking others to pray.  I would read up right after I was given a new diagnosis or problem writing down signs symptoms and ways to help prevent flares then that night let it go to God then not think about it again. This is how I keep my flares under control staying positive and keeping myself busy and happy even with all the stress of family and my foster children's therapy, maybe this can help others. Letting go by praying or writing it down and throwing it away or burning it or expressing your feelings on social media and letting it go to the clouds.  Just letting it all out and not stressing on it again...I hope this helps someone else.
I was told I have Discoid Lupus today. I have it on my scalp and side of my face a in my ear. My job does stress me & i also have 3boys that add to it, but with love. I just wonder if hair will ever grow back in that spot on my head. Your words was helpful, but I'm still sad about it all.
THANK YOU FREDA LYNN FOR SO ELOQUENTLY STATING WHAT WE ENDURE!!  I TRY TO EXPRESS THIS ON FACEBOOK.  I'M NOT A WRITER?  YES GOD!!!  IS THE ONLY WAY I HAVE MADE IT THUS FAR!!!    

I HAVE HAD SLE 20 YEARS ALSO...  THINKING BACK TO WHEN I WAS FIRST DIAGNOSED;  THE MUSCLE SPASMS THAT MADE ME APPEAR TO BE HAVING GRAND MAL SEIZURES??  I WAS BEING THROWN AROUND LIKE A RAG DOLL:  SCARYING MY LOVED ONES??  THE HAIR LOSS AND BUTTERFLY RASH WERE JUST AWEFUL AT 35 YEAR OLD YOUNG LADY??  WHEW!!    

PERHAPS GOD WILL GIVE US THE CURE SOON??  ACTUALLY, I BELIEVE HE IS DOING JUST THAT!!!  BE BLESSED AND TRAVELING GRACES FREDA LYNN!!!  PAIN FREE DAYS!!!  
My discoid lupus was just diagnosed and has been stmptomattfor 9 months. Why did my doctor send me for blood tests
discoid lupus is only symptom. the doctors run test to find out the etiology then you get diagnosed and treated.
My discoid lupus effects the scalp malnly with hair loss,  also battling Scleroderma on top of this.  The lupus/Scleroderma has effected my pancreas also.  Have chronic pancertis a long with other issues.  God bless you all fighting these horrible none cueable immune disorders.
I was told I have Discoid Lupus today. I have it on my scalp and side of my face a in my ear. My job does stress me & i also have 3boys that add to it, but with love. I just wonder if hair will ever grow back in that spot on my head. Your words was helpful, but I'm still sad about it all.
The hair, maybe, maybe not. Hey, that isn't so hard to fix, there're nice wigs to choose. Remember appropriate treatment is always helpful.  Think about this, some patients had renal failure from SLE, even as rich as Selina Gomez. You don't have any other complications, you're having a better condition than her.
No I have the same lupus as you I have bald spots and I’m losing my hair it won’t grow back
The hair most likely will grow back, usually white or no color at first but will change to your color. Weird I know, been through it myself. Unfortunately it may well fall out again. And or get worse, bigger patches other places on your scalp. I hate telling you this but at a point it will stop growing back, and you'll lose more. Most likely. I've had it for years, hair loss started in my late 40s. Bad enough I had my head shaved and got a full wig. About 6 months later had it taken off to get a new wig and all the hair had grown back. Short but it continued to grow. A few years later it started falling out again and continues to do so. I'll be 66 this May and I have very little hair left. I've had so called Discoid Lupus and may have Alapecia with that another auto-immune disease. I've been through outbreaks, rashes, itchy bumps everything. I do prednisone which  clears it up, and some topical steroid lotion/sauve. Wear sun block everyday, wear a hat, try to stay out of the sun and out from under florescent lights. Try not to stress, smoke or eat a bad diet. Go see a good dermatologist if you haven't already. I feel for you, really. Good luck to you. Oh yeah, I am a guy. This disease affects more women than men
The hair, maybe, maybe not. Hey, that isn't so hard to fix, there're nice wigs to choose. Remember appropriate treatment is always helpful.  Think about this, some patients had renal failure from SLE, even as rich as Selina Gomez. You don't have any other complications, you're having a better condition than her.
I agree with you she’s making people aware of lupus so many people don’t know about lupus
I havediscoid erythematosis lupus my skin is scared so bad I’m not able to go out in the sun anymore or lights in my house I have bald spots and losing my hair I’m always getting the lesions blisters with puss and red inflammatory spots I have sores in mouth and in my nose I’m depressed I need a good doctor dermatologist if any one know of one please pass it to me and phone number I just also found out I have osteoporosis and also I have to go to heart doctor
Hello, I am very sorry to hear that you need it, and I can't help you too much. Have you seen the doctor in a nearby hospital? You have to believe in him. If he can't do anything, he will recommend experts who are better in the same field. Wishing for health.
I have Lupous An abt a month ago I had blisters come on my feet mainly big toe. Well I thought they were from wearing new shoes. But I have been home for seven days not wearing shoes An now I have blisters coming up on the other big toe An top of my foot. Please let me know if this is lupous.
I have the same exact symptoms but I’m not sure if it’s Lupus. I’ve had test come back positive and negative. Yvette interested in knowing if anyone else has this problem. I was told by Cardio it is Bueger’s Disease but PCP doesn’t believe it.
I have brown spots on my face so is that sign of lupus. I was told to wear a hat when I go out in the sun.
Sle is an overactive autoimmune disease, and when photosynthesis of sun and vitamin d happens,it can cause lupus flairs . It is actually contraindicated to take vit.d supplements ..also don't take vit b supplements. They can make an overactive immune system increase ,which just adds to more painful symptoms of sle.
I have brown spOtsego on my face is that a sign of lupus on my face. I was told to wear a hat when I go out and the sun.
Sounds like pigmentation. Sun exposure aggravates pigmentation, wearing a hat is a way of sun block.
To whom ever reads this. I am currently recovering from 2 back surgeries and my State Disability in California has not been exhausted. I was told 1 week prior the my second surgery in August that I tested positive for Discoid and SLE Lupus. Does anyone know if Lupus qualifies s for permanent Social Security Disability? Also does anyone one if you pay income tax on disability income? Thank you for anyone that may have answers or encouragement. God bless you with all that is good. Thank you and have a Happy Thanksgiving. The Good Lord will see me through and you as well. Peace, Victoria
I know the Social Security Administration now recognizes Lupus as a disabling condition, the application process seems difficult and takes long time.
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