What Are the Stages of Lewy body Dementia?

  • 2

2 Answers

These messages are for mutual support and information sharing only. Always consult your doctor before trying anything you read here.
What are the final stages of this diease
Final stage: extreme muscle rigidity, sensitivity to touch, speech difficulty, being susceptible to pneumonia and other infections, the infections may cause death.
Is sudden weight loss a sign? Or incontenence?
Sudden weight loss is not a direct sign. Fecal incontinence, as a sign of autonomic nerve malfunctions, is a sign of Lewy body dementia. The clinical symptoms are:

Visual hallucinations. Hallucinations may be one of the first symptoms, and they often recur. They may include seeing shapes, animals or people that aren't there. Sound (auditory), smell (olfactory) or touch (tactile) hallucinations are possible.

Movement disorders. Signs of Parkinson's disease (parkinsonian signs), such as slowed movement, rigid muscles, tremor or a shuffling walk may occur. This can also result in falls.

Poor regulation of body functions (autonomic nervous system). Blood pressure, pulse, sweating and the digestive process are regulated by a part of the nervous system that is often affected by Lewy body dementia. This can result in dizziness, falls and bowel issues such as constipation.

Cognitive problems. You may experience thinking (cognitive) problems similar to those of Alzheimer's disease, such as confusion, poor attention, visual-spatial problems and memory loss.

Sleep difficulties. You may have rapid eye movement (REM) sleep behavior disorder, which can cause you to physically act out your dreams while you're asleep.

Fluctuating attention. Episodes of drowsiness, long periods of staring into space, long naps during the day or disorganized speech are possible.

Depression. You may experience depression sometime during the course of your illness.

Apathy. You may have loss of motivation.
What is the treatment for this
Lewy Body Dementia (LBD) is a progressive dementia that results from protein deposits in nerve cells of brain. There is no cure for LBD. Treatments aim at managing the symptoms.
There are some medications may help. Cholinesterase inhibitors like Rivastigmine is to increase brain chemicals to improve alertness and cognition. Decarboxylase inhibitors like Carbidopa or Levodopa is to reduce muscle rigidity and slow movements. Antipsychotic medications like Olanzapine is to treat psychotic symptoms such as hallucinations.
In addition, physical therapy can improve gait, strength, and flexibility. Occupational therapy can train the patient to perform everyday tasks independently such as eating and bathing. Speech and physical therapy can improve problems with swallowing and speaking. Mental health counseling can provide guidance to the patient and caregivers on coping with the disease.
My mother was recently diagnosed with Lewy Body Dementia. Trying to figure out what stage she is in. Cognitive skills seem to diminish by the day, shuffling when walking, very confused, constipation, lacks a desire to converse. Becomes agitated in the mornings. Several naps throughout the day. First appointment is 8-22-2019 any thoughts
Following are the stages of Lewy body dementia:
Early Stages

In general, the earlier stages of Lewy body dementia may involve hallucinations or other distortions of reality such as delusions, restlessness, acting out dreams during sleep (called REM sleep disorder), and some movement difficulties.2 Some people may appear to "freeze" or get stuck as they're moving around, and others may develop urinary urgency and incontinence. Unlike Alzheimer's disease, memory is usually still pretty intact in the early stages, although confusion and some mild cognitive changes may be present.

Middle Stages

As Lewy body dementia progresses towards its middle stages, symptoms develop that more strongly resemble Parkinson's such as increased impairment of the body's motor functions and falls, difficulty with speech, impaired ability to swallow and increased paranoia and delusions. Cognition also continues to decline and these changes often include decreased attention and significant periods of confusion.2

Later Stages

In the later symptoms of Lewy body dementia, extreme muscle rigidity and sensitivity to touch develops.3 Care becomes necessary for almost all activities of daily living. Speech is often very difficult and maybe whispered or absent. Lewy body dementia typically causes the individual to become very susceptible to pneumonia and other infections due to weakness, which may eventually be the cause of death.4

The average lifespan of a person newly diagnosed with Lewy body dementia is between five to seven years. However, there are those who have lived up to 20 years, according to the not-for-profit Lewy Body Dementia Association.

Your mom seems to be in early-middle stages.
She is having hallucinations regularly.  Her appetite is good.  I'm not seeing rigidity, but she does drag her feet.  Additionally, she knows me some days and other days?.....has to ask me who I am.  In the beginning I was devastated but as time has gone by (approx. 6 months, I face it head on with kindness and understanding and consider her confusion not such a big deal.  I'm happy to explain answers to her questions, and I am caring for her at home. No one in an assisted living situation is going to comfort her like I do and am convinced it was God's plan for me to care for her.  In addition to her dementia, she has macular degeneration and little ability to hear.
Idk who this HER is but I’m very sorry to hear that she is suffering from similar symptoms to my mom’s. this horrible disease really made my mom get stiff. All of a sudden, she just stopped walking. Out of no reason, she couldn’t get her legs to go straight, or walk. She was then suggested to stay in bed for years. Over time, she would take me as other person, act like she was not herself and it seemed that she was hopelessly struggled with the vision hallucinations. It really hurt to see her behave like this. But I knew my company was her best comfort, so I’d been there by her side, taking good care of her till the day she was gone. GOD Bless you and HER for caring enough to ask and being there for her.
...