You won't find too much information. All sites repeat the same limited information. WHY u ask? Because no one famous has taken an interest in this disease nor funded any research!!! What u will learn here are accounts, trials, errors, and commonality amongst the MANY people suffering. U might learn without making the mistakes others have already done. Mostly, you MUST learn, know and LISTEN TO YOUR BODY. U have to be ur own doctor! God bless you and good luck!