How To Identify Polymyalgia Rheumatica?

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These messages are for mutual support and information sharing only. Always consult your doctor before trying anything you read here.
I am 53 and just diagnosed with PMR. The hardest part for me is that prior to this diagnosis, I suffer from chronic pain from several surgeries in which were unsuccessful. Then in April of 2018 I was diagnosed with PMR, I honestly thought I was dying. Since the DEA had gotten involved in the so called Opioid Epidemic, ( For those who decide to abuse drugs will do so no matter what) those of us who are suffering daily with true and uncontrolled pain in general then have an autoimmune disease that causes even more pain have no place to turn to. My pain keeps me from living life. I would like to see the DEA take in consideration that NOT ONLY cancer but PMR should be included in the list of diseases that should be allowed more pain reliever. Steroid use is bad for your bones and honestly it really doesn't help PMR pain enough. The damage it does outwards the good. Opioid use when followed as directed could give me back my life. I spend 22 hours a day in a chair. I have no life and nothing good to look forward to
The PMR pain is killing, I don't understand why Lord punish me in htis way. I ain't do anything harmful to anyone.
I would agree with you. Teenagers are getting into addiction, the government can't solve that, so they sacrifice those really need Opioid for the pain. How can this be right?
That is my story to a tee. I'm 63 years old and the doctors told me to take Tylenol. The severe pain is unimaginable. I found a new doctor that prescribed prednisone and I can tell it is already working! Have you tried it?
I agree with the fact that ppl with chronic horrible pain has been sacrificed by our government so they can say they have done something about the opioid crisis. I also have been told to take Tylenol for pain and now my liver has been compromised with stage 3 liver fibrosis caused by OTC pain meds!
Tylenol, which is also known as acetaminophen, is a pain reliever and a fever reducer. It is notorious for its side effects of causing liver injury. It could even cause acute liver failure in some patients necessitating liver transplant!
Hi Shawn! Don’t even get me started with the DEA cracking down on Opioids because of the deaths of people who misuse them. So angry that people with horrible pain have to suffer because of doctors that are paranoid to even write a prescription for them when they know darn well that they can totally help people live a somewhat normal life with little to no pain. I read an article awhile ago that now they are rethinking the whole thing because they feel now that they went way overboard by severely restricting opioid prescriptions. I have severe RA and live with pain everyday of my life. And to make matters even worse I was run over by a Fed Ex truck a year and a half ago which left me with permanent damage in other parts of my body that weren’t affected at that time by the RA. I am on a very low dose of oxycodone and my doctor keeps whining about that. She wants me off of it and I said no way with the pain I am having now. I have to wait and see what happens I guess but without it I would have no life at all. I told her that I would like her to deal with the pain I do every day of my life and then she can talk to me about the tiny dose she so wants to take me off of. The whole opioid thing infuriates me! I just don’t know what one could do to stop all of this madness. Sick of being made to feel like a junkie just because I’m on this little dose of an opioid. Totally ludicrous and not fair! Hope you feel better soon! I also hope that the DEA will rethink their stupidity and how they are hurting people with chronic pain like us. Won’t hold my breath though!
Hi, I totally agree with you about the DEA and our stupid government. I can sympathize with your pain probably way worse than mine. I have just developed RMA have all the symptoms to a tee. trying to convince my dumb ass doctor that i have it. My daughter warned me about Western medicine. Peace and Love to you.
They warned me in a UK forum that even if I was able to taper my dose to zero, it would probably return and demand I go back on prednisone. It's been three plus years since I patted.myself on the back for tapering to zero without a flare up. The my left thigh and right rear shoulder and back began to ache middle of the night. Changes in position and heating pad got me through the night. This AM I remembered my three year trial with PMR. I will go for the blood tests and professional opinion ASAP. Hopefully I can let the prednisone do its thing again.
I agree with all of you I have been on pain medication for a long time and have never misused it they need to take a good look at people that have chronic pain and they need their pain meds to even have halfway normal life so we need to get together and write our legislatures I will get back to you later I am in very much pain right now
I am 53 and just diagnosed with PMR. The hardest part for me is that prior to this diagnosis, I suffer from chronic pain from several surgeries in which were unsuccessful. Then in April of 2018 I was diagnosed with PMR, I honestly thought I was dying. Since the DEA had gotten involved in the so called Opioid Epidemic, ( For those who decide to abuse drugs will do so no matter what) those of us who are suffering daily with true and uncontrolled pain in general then have an autoimmune disease that causes even more pain have no place to turn to. My pain keeps me from living life. I would like to see the DEA take in consideration that NOT ONLY cancer but PMR should be included in the list of diseases that should be allowed more pain reliever. Steroid use is bad for your bones and honestly it really doesn't help PMR pain enough. The damage it does outwards the good. Opioid use when followed as directed could give me back my life. I spend 22 hours a day in a chair. I have no life and nothing good to look forward to
The PMR pain is killing, I don't understand why Lord punish me in htis way. I ain't do anything harmful to anyone.
I would agree with you. Teenagers are getting into addiction, the government can't solve that, so they sacrifice those really need Opioid for the pain. How can this be right?
Omg I just wanted you to know I just got through reading your post.I never thought I'd find someone else that is feeling the same way that I am I've been through so many surgeries I've stopped counting. after this last one.I ended up getting a Strep B spinal infection and staff infection,I was on vancomycin 1250 mg 2 times a day and cytochrome in the am @ 2cc every day for 4 months now 1000 mgs of keflex and that's not even the problem ever since this surgery was done my body is in more pain as if I had the flu for months I've had numerous tests done you name it.and I'm in recovery. My doctor's know all that but how can I cry or talk to anymore Drs about how bad this hurts and I miss doing things that I ever complained about (food shopping) and I spoke with my aunt and she told me that one of my other aunts has this disease I just don't know what to do anymore
Job 34 : 10 and 1John 5:19
I use CBD oil and turmeric makes a huge difference
I thought that if I wasn’t dying that I could not live with this forever. That I would need a plan at some point to end my own life. That’s when I was diagnosed. Now I’m on steroids. But I’m 65 now with weak bones already.  Pain killers alone did not help the PMR. But I would not have made it the 3months before diagnosis without them! I was willing to get them black market if need be.  Something must be done to make them see that all or nothing is not the answer. Individual people must be looked at individually. Treated individually. With humanity.
I was diagnosed with PMR 2 yrs ago. Before the diagnosis I thought I was dying. Yes the pain is horrendous but no amount of painkillers or opioids helped. I finally saw a rheumatologist who prescribed methylprednisolone (I can’t take prednisone) which has given me back my life. I still get the occasional flare and have to up the dose on the steroid but I can at least function somewhat normally. 2 weeks ago I was diagnosed with ulcerative colitis and guess what the external symptoms of UC are the same as PMR. Muscle pain, weakness, uveitis & fatigue.

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