How To Treat Sickle Cell Anemia?

  • 3

3 Answers

These messages are for mutual support and information sharing only. Always consult your doctor before trying anything you read here.
I have sickle cell trait as I was told as a child. I have always been in pain and use to faint alot but lately I have been really sick with a cold that won't go away chest pain and now my legs and feet are swollen. I don't have insurance. I have not went to the Dr is there anyone that can help. Can the trait turn in to full blown sickle cell?
Sickle cell trait means only one of your two genes is with error. A sickle cell trait almost never develops symptoms. It must be somehting else, e.g. chronic infection?
How did you know you're sickle cell trait, not sickle cell disease? The symptoms are quite like anemia.
Hello Sheryl , my daughter is having similar symptoms and I’m curious have you reached out to anyone else like a health professional concerning your symptoms
Hello Sheryl I'm just seeing this months later hopefully you've gotten the answers you were looking for. I too have trait and so does the father of my children. We both experience pain especially during winter months and both are anemic. 2 of our children have disease. I say all that to say dont let anyone make you believe trait doesn't have issues..we may not have them as severe but it is possible.
You should see a doctor. You might require emergency medical treatment with antibiotics and other treatments.

It may be Acute chest syndrome.

This life-threatening complication causes chest pain, fever and difficulty breathing. Acute chest syndrome can be caused by a lung infection or by sickle cells blocking blood vessels in your lungs.
I too have sickle cell trait and have been have the same issues as if I had disease. I went to the Cleveland clinic for a complete work-up and that diagnosis me with an Active Sickle cell trait.
I have the trait too and I have had my eyes hemorrhage many times.  Also I suffer with chest pains, swollen toes, feet, legs, at times my total body swells, an elarged spleen, low white and red blood cells, along with low platelets. and shortness of breath.  It is no joke. So far, I have had one blood transfusion.  Most doctors don't know enough about sickle cell trait to treat it.  You have to go to a hematologist trained in this area.
I’ve been going through pain in my Abdominal area all my life the back of my feet swell my leg hurts sometimes I can’t even walk and I found a website that says sickle cell disease and trait have the same symptoms and that they found a lot of the military people that die has sickle cell trait and they die from over exercising
Can you please share that website? Thanks
I have sickle cell trait as I was told as a child. I have always been in pain and use to faint alot but lately I have been really sick with a cold that won't go away chest pain and now my legs and feet are swollen. I don't have insurance. I have not went to the Dr is there anyone that can help. Can the trait turn in to full blown sickle cell?
Sickle cell trait means only one of your two genes is with error. A sickle cell trait almost never develops symptoms. It must be somehting else, e.g. chronic infection?
How did you know you're sickle cell trait, not sickle cell disease? The symptoms are quite like anemia.
Hello Sheryl , my daughter is having similar symptoms and I’m curious have you reached out to anyone else like a health professional concerning your symptoms
That's not true! My daughter has the trait and have the same symptoms as well. We are at the emergency room at least every other month due her being in a crisis. I don't know why Dr. tell you all that because you are still in the category of the trait family. Please do not take your trait for granted! It can cause a multiple injuries to your organs and even death. Seek help by goggle people that suffer from the trait as well.
My daughter and my son have the sickle cell trait, and both of them have symptoms.  My son just have chest pain sometimes, not too bad, yet. In the other hand, my daughter started having symptoms (dizziness almost to fainting) since she was 11 years old; then sometimes she had some really bad episodes of shortness of bread during her conditioning.  I took her to a Pediatrician when she got the chest pain and it didn't go away for 3 weeks; he said "Sickle cell trait doesn't have symptoms, she has asthma;" I  told him to look for medical articles, but he ignored me.  Since then she is been having a lot more health problems: chest pain and shortness of breath episodes more often, and now muscle weakness to the point of dropping to the floor, but worse now her lungs are not ventilating properly.  We were recommended to take her to a Pediatrics hematologist (with knowledge about Sickle cell trait), we are waiting for her appointment.  I wish you, your family, and my kids to have the best outcome for this health problem!
... My daughter had the chest pain for 3 weeks 16 months ago and is when I took her to the pediatrician.  I want to add that  when I told the Pediatrician to look for articles I did it respectfully, I am a general physician and I have read a lot of articles talking about people and athletes with Sickle Cell trait and their symptoms; I didn't know they could have symptoms until my daughter started having symptoms and started researching about it.  I expected the doctor to check some articles by our next appointment, so my daughter could have some extra tests and find out the reason of her symptoms, but sadly he did not.
Sorry to hear about the story of your children.It must be sad to find both your son and daughtor having the same disease. I think the doctor who checked your daughtor is not a good one, at least not a professional one. Or he would know sickle cell anemia do have symptoms, including episodes of severe pain, breath with difficulties(as your daughtor has), infections and so on. There's no cure for sickle cell anemia, but treatment can relieve the pain and other related symptoms. I sincerely hope that in the next appointment your daughtor can meet a responsible expert in the field.
Jun 3, 2019

Bioengineers of Rice University's Brown School of Engineering conducted the research in collaboration with Texas Children's Hospital, Baylor College of Medicine and Stanford University. They use CRISPR-Cas9 and a corrective short DNA template to repair the sickle cell mutation in a patient's hematopoietic stem cells, and it seems to be efficient and safe.

This may open a door to the cure of sickle cell disease.
...