I was diagnosed almost 11 yrs ago with ILD and just recently, stage 4 liver disease. I was diagnosed with scleroderma about 4-5 yrs ago with all the diseases that go with that, raynauds syndrome, shogrens, arthritis, vasculitis, and others. I got the shock of my life when I went to see my rheumatologist a year ago. She was such a bully to the point of being down right mean. She said, as she stomped out of the exam room “and you don’t even have scleroderma!” She left me sobbing on the table. She’s refused to talk to me since, yet has her assistant message me saying she wants me to have these $9000 infusions, twice two weeks apart . I know nothing about them. Anyway, today a receive a message via a message board of sorts from my Pulmonologist saying I don’t have ILD! I had an open lung biopsy several yrs ago confirming the diagnosis. She was not my doctor then. Both doctors left me high and dry. I know nothing now. What in the world do I do? I don’t want my physical well -being in their hands. And w