I have systemic scleroderma. I was diagnosed in 2002. It is now 2019 that is 17 years with this disease. I am 72 years old. And my Rumotologist said I probably had 7 years left? My skin on my hands is shiny and I have red marks on my face, chest, arm and hands. I also have pulmonary hypertension. I have never taken any medication for my scleroderma. However I have taken bata blockers for the blood pressure in my lungs. I’ve had 3 flare ups. The first put me in hospital. Second I stayed at home but it took me 4 weeks to get over it? The 3rd was last week but was not as bad as the first two. I actually think it’s because I started on the Niacin and the rest of the vitamins? Time will tell but my hair is stopped falling out and my skin is looking better. When I was in the hospital They diagnosed me with A-Fib heart. So they put me on a Beta blocker Sotolo and plavix blood thinner. I was on those meds from Aug 2018 till
Feb 2019. I asked my cardiologist if I could get off of those meds and go on natural vitamins for the heart and blood presssure. He told me he would support me in whatever I chose to do. He knows I am a high risk for stroke. But the meds weren’t really helping me? I have a low platelet count so my doctor couldn’t put me on a stronger blood thinner because of my platelet count. So in reality the Plavix wasn’t helping me either. So I wanted to go natural since my outcome with meds wasn’t helping anyway? I’ve been on no-flush Niacin, 525mg, Vitimin E 400iu
Lecethin 1200 mg,and kyolic which is garlic, hawthorn, cayenne. For 2 going into 3 weeks now. So far I have a lot more energy. My balance problems are better. My hair has stopped falling out. And I feel good. Now I did have a few days with a flare up? But it was very light weight and I got over it fast. I’m hoping this will help me live another 17 years. Time will tell and I am not suggesting this for anyone else? It’s just that I didn’t have many options?