Diagnosed with Severe case of Measles age 26, in Florida while working for an Internist, Koplik spots in throat, fever of 106, unconscious, hospitalized on ice mattress for 1 week! Study revealed and Just found out this led to Immune Amnesia October 2019!
3 years after Measles Moved, while managing a psychiatrist’s office, in Cincinnati, parents were visiting, went out to dinner, not hungry, Parent’s went left to drive home to South Florida, I was running fever of 104-105, nauseas, passed out, husband rushed me to the hospital! Spent 8 weeks in the Christ Hospital, Every gland golf ball size in neck, under arms, groin, everywhere! Negative Mono Spot Tests! Severe Fatigue, Pain in Neck, Arms, lower limbs! My physician was a Hematolgist/Oncologist and I also had an Infectious Disease Specialist on my case! I had Bone Marrow Taps, every test and radiology.tests and Blood tests possible! This was 40 years ago!!! I was Diagnosed with Chronic Epstein Barr Virus Syndrome! I was discharged and ordered to relax and recover in Florida, when I arrived, was exhausted! Saw a hematologist/oncologist 5 days after arriving, he ran my blood work, had extremely high white blood count, severe anemia! Ordered me back to home/ spoke with my Dr..in Cincinnati flew home was hospitalized in Bethesda Hospital with same Dr. (CFS wasn’t a diagnosis at that time) was given Prednisone,? moon face! Another 8 weeks in the hospital again!!! Still exhaustion, severe w/glandular enlargement fever pain, severe headaches, dizziness, sinusitis! Hospitalized 20 + times minimum!
This continued for years and years! Had 2 major sinus surgeries as an adult, tonsils and tubes! Suffer with headaches, and continue to suffer to date with enlarged glands, Now Diagnosed with Fibromyalgia along with Chronic Fatigue Syndrome and Still with Chronic Epstein Barr Virus! It’s not done any good to have these diagnoses!!! I filed with Social Security when I had the time and could have collected it! I was denied 2 times! My diagnosis was not recognized at that time by Social Security! Don’t know if I can go back to collect now? Any answers would be appreciated? I haven’t been able to work since1983!!! That’s 36 years!!! I had enough earnings and years going back before then! Thanks!!!