What Is Guillain Barre Disease?

2 Answers

These messages are for mutual support and information sharing only. Always consult your doctor before trying anything you read here.
Guillain barre disease is a rare disorder. People who have it find their immune systems attacking their nerves. Besides, they feel weak in the extremities. Symptoms are:
  • Fast heart rate
  • Pins sensations in the toes, fingers, ankles, or wrists
  • Difficulty moving eyes
  • Difficulty swallowing and speaking
  • Difficulty breathing
  • Inability to walk
  • Weak legs
Scientists still have no idea what causes the syndrome, though it usually happens after a contagious disease such as the stomach flu. Unfortunately, there's also no treatment for it. But most people can recover.   Keyword: guillain barre disease
Recovery rate
Gillian-Barre Syndrome, known as GBS    came upon me quickly.  
     Doctors of two hospitals were reluctant to diagnose  my sudden attack of paralysis as GBS because it is “rare.”
              Getting ready for church, I just fell 3 times.  By noon I felt pulsating sensations in the back of head close to the neck. 2 hours later I had trouble getting up from a chair and within the next hour my legs would not hold me up.  
   I was taken to a small city hospital and many  tests/scans were made.  During that time my
hands became unusable.  A young doctor (relative) 300 miles away researched and requested that I be checked for GBS. Doctors dismissed the idea because GBS is rare.  Hubby requested us to be transferred to a well known big city hospital.  I insisted on signing in other than just an X.    By midnight, I was having a blood cleansing of plasma.  Put to bed to sleep.  Sometime later I woke.  Some thing was “amiss” with my hand. Opening my eyes, I found my arm straight and my hand waving, IT WAS MOVING!  Total of 5 plasma removables exactly 48 hours apart I was on the way of recovery.   Though it took over a month more before I was released.   I used a walker for 3 months, slowly weaning myself as I improved via physical therapy & time.
My mother had it when she was in her late 60's. It basically made her a quadriplegic for a few months. Symptoms started in November and by Christmas she couldn't move at all. She slowly returned to normal which was around June. Fine motor skills were slightly affected permanently. My niece also had it when she was 16. It affected her extremities and her face to the point that she couldn't talk or swallow and had difficulty breathing. She ended up in ICU for a couple of weeks. She recovered much quicker than my mom. They both received plasma exchange and immunoglobulin therapy. Hope this helps you!
I had a sinus infection and bronchitis at the same time, that triggered GBS, worked for a day as a driver helper for UPS, my legs felt weak, that night I could barely crawl, next morning I couldn't move. Was able to breathe and swallow.  Took 6.5 months to be able to walk again
...