What Is the Marfan Foundation?

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What is the Marfan Foundation?

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According to Wikipedia, The Marfan Foundation (formerly National Marfan Foundation, NMF) is a non-profit organization in the United States established to raise awareness and promote research on treatment of Marfan syndrome and related disorders. The Foundation provides information about Marfan syndrome and funds research. It aims at saving lives and improving the quality of life for people affected by Marfan syndrome, which is a genetic connective tissue disorder. The Foundation also lobbies Congress to fund Marfan syndrome research and engages in its own fundraising activities. Keywords: marfan foundation; marfan syndrome foundation; national marfan foundation