Is Malignant Schwannoma A Fatal Condition?

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3 Answers

These messages are for mutual support and information sharing only. Always consult your doctor before trying anything you read here.
Most Schwannomas are benign, and only about 1% is malignant. A malignant Schwannoma develops into a form of cancer called neurofibrosarcoma. This form of cancer is dangerous. However, it is not always lethal. According to the a study established by Massachusetts General Hospital, 85% of the patients with a malignant schwannoma survived.
I had a malignant schwannoma removed from my body 3 years ago, but it came back recently, which really freaked me out. My doctor suggests that I should go through another surgery or receive radiotherapy, but I really don’t wanna go through the torturing procedure again. Should I visit another doctor for help?
Hi, I know it’s hard to make a decision since you’ve been put through so much. But it happens when only one surgery won’t remove it once and for all if it’s located in a hard-reaching area or it’s too big to control. You may get an appointment for another physician, but I doubt if there is another way to help you feel better. The quicker you get a surgery, the sooner you’ll recover. You may as well ask your family or friends for more concrete advice.
Certainly you can visit another physician for alternative advice. But I think these two are only what you can choose for schwannoma treatment. You should know that if you don't move it, it will grow bigger and become worse.

More info on this disease, please?

A malignant Schwannoma is a type of soft tissue sarcoma. It often affects the sciatic nerve that begins in the lower back and runs through the leg. You can also find these tumors at the brachial plexus, or nerves at the top of the arm and the sacral plexus, a bundle of nerves in the lower back. The most common type of Schwannoma is called acoustic neuroma, because it grows on the eighth cranial nerve, which controls hearing. An acoustic neuroma can cause deafness.

Though exact causes remain unknown, it’s said to be associated with genetic factors. As for its symptoms, the patients may experience: dizziness and/or loss of balance, pain or discomfort: numbness, burning, or "pins and needles”, soreness localized to the area of the tumor or in the extremity, swelling in the extremities (arms or legs), also called peripheral edema; the swelling often is painless. In some cases, they may even find it difficult to move in the extremity that has the tumor, including a limp.